Living with a long term condition that begins at birth involves so many unplanned needs. It invites a diverse set of resources to help. Putting them all together to support the flourishing of a person involves building and integrating new knowledge. If a condition is present from birth, everything changes as the child grows and develops. Cristin’s experience helping her son, Gabriel, invites us to understand the journey
Guests
Cristin Lind
Project Manager, European Patients’ Academy on Therapeutic Innovation (EUPATI) Sweden, Swedish Disability Rights Federation and Facilitator-in-Preparation, Center for Courage and Renewal
More about Cristin
Moved by experience parenting a child with multiple chronic conditions, Cristin Lind has worked to improve health and healthcare since 2011 through her support of patients, families, professionals, and other stakeholders who collaborate to develop health and care.
Originally from the US, Cristin has supported clinical improvement teams within her family’s own healthcare system, the Cambridge Health Alliance,been faculty for regional improvement collaboratives, and a national advisor for the US National Academy of Medicine and the National Institute for Children’s Health & Healthcare Quality (NICHQ). Since moving to Sweden with her family in 2013, Cristin has continued to support patient-professional partnerships, and is currently at the Swedish Disability Rights Association. She is also passionate about creating spaces where changemakers & leaders can do the inner work that allows them to lead with integrity and is currently a facilitator-in-preparation with the Center for Courage & Renewal.
Cristin speaks with Paul about building knowledge of the experience of living with a long-term condition.
Supplementary materials
Readings
Cristin Lind, Care Mapping, https://cristinlind.com/newcaremap/
Antonelli RC, & Lind C. Care Mapping: A How-To Guide for Professionals
Antonelli, Richard C., and Cristin Lind. Care Mapping: A How-To Guide for Patients and Families